About Christopher and 1 Boy 4 Change
I am Christopher Carswell and I am 17 years old. I have been fighting since before I was born...
I have had multiple hand reconstructive surgeries. I have had tonsil and adenoid surgery - it went wrong and I had a feeding tube for a while. I have been in a wheelchair with bilateral leg casts. I have been in OT, PT, speech, and music therapy as long as I can remember.
October 11, 2007 I started having seizures and I went into respiratory/cardiac arrest. (I died in front of my school and third grade class) I spent several days in PICU and a couple more days in a regular room. I was put on medicine to control my seizures. I have had lots of tests, x-rays, MRIs, EEGs and EKGs done.
At some point in my life I had a stroke. The area of my brain where the stroke occurred affected my vision - taking away the right half of my vision field. I am legally blind. This same area of my brain is where the doctor's think my seizures come from.
I have numerous trips out of state to get treatment from medical specialists. I see a cardiologist, neurologist, neurosurgeon, genetics specialist, orthopedists, ophthalmologist, and a pediatrician. My childhood has been and continues to be governed by medical challenges.
January 2010, I received Bronx, my service dog! Now, at-least, I don't have to go through these challenges alone.
January and February 2015, I spent 33 days in the hospital and survived four brain surgeries! I overcame the unexpected adverse reaction to the first surgery, exceled in recovery after the second brain surgery, and made the third brain surgery look easier than any of my doctors expected.
March 2015, I was diagnosed with Loeys-Dietz Syndrome 4 and an entire new book in my medical journey is beginning...
I have grown stronger and wiser through all of my challenges. I have seen the kindness of a stranger, a random act of kindness, a kind word, a prayer and I know “first hand” how good it can make you feel. So, when I was 13 years old I decided to start 1Boy4Change!
Our mission at "1 Boy 4 Change" is to be an agent and catalyst of change - change in the way we see ourselves, our community, and our world - by "paying it forward", raising awareness, and providing assistance and hope for individuals and families with disabilities; as well as by providing support for the dedicated individuals who protect us at home and abroad.
Join me and we can all make a difference in at least one life!